About us

The Diana Camidge Foundation, set up by Diana's family and friends, is raising funds to find a cure for the illness which tragically took her life.

Diana died in September 2016, aged 46, from an extremely rare prion disease called Gerstmann–Sträussler–Scheinker (GSS). This is similar to CJD and there is currently no cure for it. 

However, the MRC Prion Unit and the National Prion Clinic (NPC) have created a drug which could potentially treat this illness. 

We have now passed the three anniversary since Diana passed. 

The Foundation was set up with the specific objective to raise monies for www.curecjd.org . To date we have raised over £48k out of a CJD total of £385k which is a wonderful amount!  

Professor of Neurology Simon Mead - the brilliant doctor who treated Diana says: “The UCLH Trust made an announcement that it is set to give PRN100 (an antibody, for treating CJD) to patients for the first time in the world after a judge in the Court of Protection confirmed that it is lawful and in the patient’s best interests to receive the unlicensed treatment”

The pioneering treatment announced would not have been possible without the Foundation’s contribution and ongoing support. The need for funds to support our ongoing work continues as we work towards a meaningful treatment for CJD”

We will keep you updated with this and future fund-raising events.


We will be running all kinds of different events throughout the year and we hope you are able to come along to some of them and support our cause.

"We want to end the devastating effect of this disease and save lives. Thank you so much for supporting us – it really is appreciated." John (Diana's brother)