Diana waterfall.jpg

About us

The Diana Camidge Foundation, set up by Diana's family and friends, is raising funds to find a cure for the illness which tragically took her life.

Diana died in September 2016, aged 46, from an extremely rare prion disease called Gerstmann–Sträussler–Scheinker (GSS). This is similar to CJD and there is currently no cure for it. 

However, the MRC Prion Unit and the National Prion Clinic (NPC) have created a drug which could potentially treat this illness. 

We have now marked the two year anniversary since Diana passed. 

The Foundation was set up with the specific objective to raise monies for www.curecjd.org . To date we have raised nearly £40k out of a CJD total of £228k which is a wonderful amount!  

Professor of Neurology Simon Mead - the brilliant doctor who treated Diana says:

' We are hopeful that the treatment with the drug PRN100 will commence before the end of the year. There is no doubt in my mind that this development would not have been possible without public fundraising of which The Diana Camidge Foundation is one of the major components'

We would like to thank everybody who has made a contribution to the Foundation through donations, fund-raising activity or general support – it truly is astonishing how much we have all achieved over a short period of time.

We will keep you updated with this and future fund-raising events.


We will be running all kinds of different events throughout the year and we hope you are able to come along to some of them and support our cause.

"We want to end the devastating effect of this disease and save lives. Thank you so much for supporting us – it really is appreciated." John (Diana's brother)